Health indicators for persons with intellectual ...

1 downloads 0 Views 891KB Size Report
Mar 7, 2009 - Patricia Noonan Walsh, Germain Weber and Margarida Nadal on behalf of the Pomona Group ... Dr. Christine Linehan (Project. Manager) (IE).

1st International Conference on

BRIDGING KNOWLEDGE IN LONG TERM CARE AND SUPPORT Crossing Boundaries between Ageing and Disability

Barcelona 5-7 March 2009

Health indicators for persons with intellectual disabilities in Europe Patricia Noonan Walsh, Germain Weber and Margarida Nadal on behalf of the Pomona Group

UCD Centre for Disability Studies

Ionad an Staidéir Mhichumais UCD

UCD School of Psychology

Scoil na Síceolaíochta UCD

Today’s presentation There is evidence for negative health disparities when people with intellectual disabilities are compared with their peers.

Reliable measures can help to gather comparable health data and to monitor change over time.

This presentation outlines the procedures adopted to develop and implement a set of health indicators for persons with intellectual disabilities in Europe.

Temas de la presentación las disparidades de la salud y las personas con discapacidad intelectual medidas de salud: indicadores una perspectiva europea – proyecto Pomona resumen

Derechos humanos y salud: la convención de la O.N.U Human rights and health: the UN Convention

Los partidos de los estados (miembros) reconocen que las personas con discapacidades tienen derecho al disfrute del estándar de salud más completo sin discriminación a causa de discapacidad. Cada Estado debe adoptar las medidas apropiadas para asegurar el acceso de las personas con discapacidades a los servicios médicos que son sensibles a las especificidades de género y que incluyen la rehabilitación relativa a la salud. (art 25).

Health disparities and intellectual disabilities

Algunos riesgos de salud para las personas con discapacidad intelectual • Deterioros de la representación visual y auditiva • Obesidad, nutrición pobre • Salud bucal y dental pobre • Problemas de salud mental • Medicación excesiva • Dificultades para detectar problemas asociados • Oportunidades limitadas para la promoción de la salud • Acceso pobre a las investigaciones y al cuidado médico • Las dificultades de comunicación

Invisibilidad de la gente con discapacidad intelectual en sistemas de monitorización de salud pública Hay factores adicionales que pueden afectar los resultados de la salud y por esta razón se requiere una atención específica a las necesidades de estas personas. Necesitamos datos especificos sobre las personas con discapacidad intelectual.

(Scheepers et al, 2005, p.250)

Health indicators and intellectual disabilities: the work of the Pomona group

POMONA I & II PARTNERS Prof Patricia Noonan Walsh & Dr. Christine Linehan (Project Manager) (IE)

Dr. Arunas Germanavicius (LT) Dr. Raymond Ceccotto (LU)

Prof Germain Weber (AT)

Dr. Jan Tøssebro (NO)

Prof Geert van Hove (BE)

Dr Henny van Schrojenstein Lantman-de Valk (NL)

Prof Meindert Haveman (DE) Mr Frank Ulmer Jørgensen (DK)

Dr. Luis Salvador (ES)

Dr. Tuomo Määttä (FI)

Dr. Alexandra Carmen Cara (RO)

Prof Charles Aussilloux & Dr Bernard Azema (FR)

Dr. Monica Björkman (SE)

Dr. Serafino Buono (IT)

Dr. Dasa Moravec Berger (SI) Prof Mike Kerr (UK)

www.pomonaproject.org

Trends in Europe Expansion in 2007 to the EU 27 – Population of approximately 500 million persons – Accession countries seek to join EU Diversity of culture, economic climate, social supports – migration – Unemployment Human aging – old Europe

EU Public Health Strategy

'Together for Health: A Strategic Approach for the EU 2008-2013' Principle 1 – Shared health values Actions include: System of European Community Health Indicators with common mechanisms for collection of comparable health data at all levels, including a Communication on an exchange of health-related information Further work to reduce inequities in health

Measures of health: indicators

Indicators can be classified into six categories on the basis of what it is they measure: health outcomes, risk factors, intervention coverage, structure, process, and non-health-related results. Murray 2007

Pomona Pomona era la diosa romana de los árboles frutales. El cuchillo de poda era su cualidad.

POMONA 18 Indicators

© Pomona group

DEMOGRAPHICS

HEALTH STATUS

Prevalence

Epilepsy

Living Arrangements

Oral Health

Life Expectancy

Body Mass Index

Daily Occupation

Mental Health

Income/SES status

Sensory Mobility

DETERMINANTS OF HEALTH

HEALTH SYSTEMS

Physical Activity

Health Check

Challenging Behaviour

Health Promotion

(Psychotropic) Medication

Specific training for Physicians in Intellectual Disability Hospitalisation & Contact with Health Care Professionals

POMONA Indicadores de la Salud

© Pomona group

Información Demográfica

Estado de Salud

Prevalencia Lugar de residencia Ocupación Renta Esperanza de Vida

Epilepsia Movilidad Sensorial Indice de masa corporal Salud Mental Salud bucal

Determinantes de Salud

Sistemas de la Salud

Actividad física Conductas desafiantes Medicación psycotropic

Contacto con servicios médicos Investigaciones sobre la salud Promoción de la Salud Entrenamiento de los profesionales del cuidado médico

Survey of health of n=1269 persons with ID in Europe: some findings • Most participants (77%) lived independently or semiindependently, with their families or in group homes with fewer than 16 residents.

• Countries varied in the proportion of persons living in hospitals or nursing homes.

• About one-half of participants were in the ‘overweight’ or ‘obese’ categories.

• Rates of health checks were not optimal, especially for gender-specific conditions

Demographic Characteristics Demographics 100% 90% 80% 70% 60% 50% 40% 30% 20% 10% 0%

Nursing home for elderly, psychiatric hosp or other Residential setting >16 pple Residential setting

Suggest Documents