session 1380 (symposium) session 1385 (symposium)

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Dec 27, 2017 - Chair: M.A. Bernard, National Institutes of Health,. Bethesda, Maryland ... Colorado Anschutz Medical Campus, Arvada, Colorado,. 2. Children's ...
GSA 2016 Annual Scientific Meeting

SESSION 1380 (SYMPOSIUM) NIA SYMPOSIUM FOR ESTABLISHED RESEARCHERS–A CHAT WITH NIA SENIOR LEADERSHIP Chair: M.A. Bernard, National Institutes of Health, Bethesda, Maryland Discussant: R. Barr, National Institutes of Health, Bethesda, Maryland; J. Haaga, National Institutes of Health, Bethesda, Maryland; E. Hadley, National Institutes of Health, Bethesda, Maryland; R. Hodes, National Institutes of Health, Bethesda, Maryland; F. Sierra, The National Institute on Aging (NIA) at the National Institutes of Health, Department of Health and Human Services, is the federally designated lead agency on aging research, and has supported significant research on aging as a life-long process. In Fiscal Year 2016, NIA experienced a 33% increase in its budget, the largest increase since the doubling of NIH funding 1997 – 2003. Although much of this funding is targeted to Alzheimer’s disease research, there was an increase in funds allocated to non-AD research that was greater than the NIH average. This symposium will provide a forum for exploration of the implications of the budget increases for the general research community. It will involve NIA’s senior staff discussing research priorities and programs supported by the Institute. A  question-and-answer session will follow brief introductory remarks on current funding and future priorities and research directions of NIA. THE STATE OF NIA BUDGET AND PLANNING M.A. Bernard, National Institute on Aging, National Institutes of Health, Bethesda, Maryland In FY 16 NIA received a 33% increase in budget, with much of the funds focused on Alzheimer’s Disease research. However, other areas of research also saw a 4.2% increase. Dr. Hodes, the NIA Director, will give a broad overview of how NIA plans to manage these funds, and the projections for funds management into the future. A CONVERSATION WITH NIA SENIOR LEADERSHIP M.A. Bernard, National Institute on Aging, National Institutes of Health, Bethesda, Maryland Senior leaders of all of NIA’s extramural divisions will provide a brief overview of research foci for their area of science, to be followed by Q & A  with the audience. The intent of this part of the symposium is to allow the scientific community to have an open dialogue with NIA research leadership. Attendees should come prepared to ask penetrating questions.

SESSION 1385 (SYMPOSIUM) LIFELONG DISABILITIES SPECIAL INTEREST GROUP SESSION: AGING WITH LONG-TERM DISABILITIES: QUALITY OF CARE AND HEALTH RISK FACTORS Chair: J. Wong, The Ohio State University, Columbus, Ohio Discussant: M. Janicki, University of Illinois, Chicago, Chicago, Illinois Over the past several decades, the life expectancy of individuals with long-term disabilities (e.g., intellectual disability,

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cerebral palsy) has increased. As individuals with long-term disabilities transition into midlife and late adulthood, issues pertaining to health and quality of care become more salient. An important public health concern is the identification of risk factors associated with aging in individuals with longterm disabilities, combined with accessing quality disease management and care programs. The overall goal of this symposium is to increase knowledge on health risk factors and quality of care in the fields of aging and long-term disability. First, this symposium examines the health risk factors associated with aging in individuals with long-term disabilities via the work of Dr. Patricia Heyn, who investigates the prevalence of health risk factors in adults with Cerebral Palsy. Second, this symposium, through the work of Dr. Sarah Ruiz and colleagues, identifies and evaluates the range of evidence-based chronic disease self-management options for individuals aging with long-term disabilities. Finally, Dr. Kelly Munly and colleagues examine issues pertaining to quality of care and disability in their Adult Foster Care study. Knowledge from this set of symposium papers can be used to inform care services and programs as well as public health policies. The speakers in this symposium represent a broad range of disciplines, including public health, medicine, and human development and family studies. EXAMINATION OF PREMATURE AGING IN INDIVIDUALS WITH CEREBRAL PALSY BY SELFREPORTED HEALTH STATUS P.C. Heyn1,2, D. Robertson2, z. Pan1,2, J.J. Carollo2,1, 1. Physical Medicine and Rehabilittaion, University of Colorado Anschutz Medical Campus, Arvada, Colorado, 2. Children’s Hospital Colorado, Aurora, Colorado This study examined the prevalence of health risk factors associated to aging in adults with Cerebral Palsy (CP) as measured by a phone survey and the PROMIS Adult Profile instrument-57. A total of 92 adults with CP (18–59 yrs) completed a phone survey. Fifty-six percent of the sample reported chronic pain and memory issues, 35% reported chronic pain only, and 23% reported memory issues only (p=0.0016). Those with chronic pain were older as compared to those without pain (28 (10.0) vs. 23 (4.7), p=0.002). Fiftytwo respondents also completed the PROMIS-57 survey that showed an association between chronic pain and memory issues (p=0.02). After adjusting for age and gender, those with chronic pain were more likely to report memory issues than those without chronic pain (58% vs. 23%, p=0.003). These results support the importance to evaluate health risk factors in adults with CP who are at higher risk for premature aging. CHRONIC DISEASE SELF-MANAGEMENT FOR INDIVIDUALS AGING WITH DISABILITY S. Ruiz1, K. Giuriceo2, M. Putnam4, J. Caldwell3, L. Snyder1, 1. NORC at University of Chicago, Bethesda, Maryland, 2. Center for Medicare and Medicaid Innovation, Baltimore, Maryland, 3. National Council on Aging, Washington, District of Columbia, 4. Simmons College, Boston, Massachusetts Medical advancements have extended the life of individuals aging with long-term disability. These individuals are resilient and familiar with self-care, while they navigate

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