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Innovation in Aging, 2018, Vol. 2, No. S1
ADVANCE CARE PLANNING FOR PEOPLE WITH LIFELONG DISABILITIES: A CONTENT ANALYSIS OF STATE-LEVEL PERSON-CENTERED SERVICE PLANS V. Knoke1, J. McGinley, LMSW2, C. Christina Marsack, PhD, LMSW3, H. Church, MA, RP, BCBA4, 1. University of Wisconsin Madison, Madison, Wisconsin, United States, 2. University at Buffalo, Buffalo, NY, USA , 3. Eastern Michigan University, Ypsilanti, MI, USA , 4. Western University, London, ON, CA A rapidly growing population of older adults with intellectual disabilities (ID) has presented new challenges for practitioners and researchers, particularly as it relates to issues of decision-making in serious illness and end of life. For those using Medicaid-funded services, regular interdisciplinary meetings maintain person-centered service plans for people with ID. These meetings are ideal settings for advance care planning (ACP); however, there is no available research exploring if and how these conversations transpire. This study explores how state-level service plans articulate ACP for people with IDD. A content analysis of service plans and policies from all 50 of the United States was conducted. Findings suggest that most states have tenets of ACP reflected within their service-plans; however, there is significant variability in the quantity and quality within each state. Findings from this study can be used to identify model practices for replication and gaps in current state-level practices. GSA 2018 Annual Scientific Meeting
CHANGES IN THE INTELLECTUAL DISABILITY NURSING HOME CENSUS FROM 1977 TO 2004 S.D. Landes1, Nikita Lillaney2, 1. Syracuse University, Syracuse, New York, United States, 2. xxxxx The Omnibus Budget Reconciliation Act (OBRA) of 1987 was expected to reduce inappropriate residential placements of persons with intellectual disability (ID) in nursing homes. Utilizing the nationally representative 1977, 1985, 1995, and 2004 National Nursing Home Surveys, we estimate changes in the ID nursing home census pre- and post-OBRA. We find a concurrent decline in the number and percentage of nursing home patients with ID, most pronounced between 1985 and 1995. We argue that this trend decline in the ID nursing home census, at a time of growth in the population of nursing home residents without ID, provides valid empirical evidence that OBRA legislation was successful in reducing inappropriate residential placements of persons with ID in nursing homes. BUILDING COMMUNITY CAPACITY FOR PERSON CENTERED PLANNING FOR PEOPLE AGING WITH INTELLECTUAL DISABILITY L. van Heumen1, H. Scott, PhD2, T. Heller, PhD3, 1. University of Illinois at Chicago, Chicago, Illinois, United States, 2. The University of Illinois at Chicago, Chicago, Illinois, USA, 3. The University of Illinois at Chicago, Chicago, Illinois, USA Evidence-based supports and interventions are needed to address the unique needs of individuals with intellectual disability (ID) as they age. This research evaluates the impact of an updated version of an evidence-based person-centered planning curriculum for older adults with ID (Heller et al., 1999, 2000). Revisions to the curriculum reflect new knowledge on ways to support health and wellness in this population. The researchers work closely with a community partner to build capacity for future implementation of the curriculum and person centered planning services. The researchers deliver the updated curriculum on a weekly basis at program sites of community partner, training a staff as a co-trainer in the process. The impact of the curriculum is evaluated using a randomized pre-post design with a control group. Both groups are compared at baseline, after the intervention, and at a six-month follow-up using both qualitative and quantitative methods.
SESSION 2775 (PAPER) RESEARCH METHODS FOR AGING FAMILIES ARE SOCIALLY CONSTRUCTED – IMPLICATIONS FOR QUALITATIVE GERONTOLOGY RESEARCHERS L. Ganong, C. Sanner, University of Missouri - Columbia Qualitative scholars generally have paid heed to the notion that the boundaries of family membership are socially constructed. This phenomenon has been central to our research with intergenerational stepfamilies, but socially-constructed relationships and family identities create challenges for us as qualitative researchers. In studying post-divorce families and stepfamilies, we have found that kinship is truly “in the eye of the beholder,” and we are aware that researchers’ definitions of family positions and relationships often differ from those
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A PERSON-FOCUSED HEALTH PROMOTION AND WELLNESS APPROACH TO EXTEND HEALTHSPAN IN ADULTS WITH DISABILITIES: THE CHAMP - D P.C. Heyn1, A. Tagawa, BS2, Z. Pan, MD, PhD3, J. Carollo, PhD, PE4, 1. University of Colorado Anschutz Medical Campus, Arvada, Colorado, United States, 2. Center for Gait and Movement Analysis, Children’s Hospital Colorado, University of Colorado Anschutz Medical Campus, CO, USA., 3. The Colorado Research Institute Biostatistics Core, University of Colorado Anschutz Medical Campus, CO, USA., 4. Center for Gait and Movement Analysis, Children’s Hospitals Colorado, University of Colorado Anschutz Medical Campus, CO, USA. This presentation will discuss the findings from a person-focused health and wellness approach to healthspan called Comprehensive Health Assessment and Motivation Program for Individuals with Disabilities (CHAMP-D). The CHAMP-D is a health passport platform tool designed to screen early chronic disease development associated to accelerated aging (i.e. metabolic syndrome, sedentary behavior, obesity and memory impairment) with the goal to empower self-health control and management in adults with cerebral palsy from the Cerebral Palsy Adult Transition and Longitudinal Study (CPAT). Data from 72 participants and CHAMP-D follow up data will be presented. Since participating in the CHAMP-D, 57.9% of the participants reported increased physical activity levels, 57% made healthy changes to their diet, and 55% showed the health recommendations to a health professional. CHAMP-D health passport seems to have great potential to intervene in the process of early disease development in individuals with disabilities and to decelerate their early aging process.
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